I have written before about concerns we have had for Zachary’s development.
A few months ago he was referred for a Hearing test, speech therapy and to podiatry due to his lack of speech and walking.
He had his hearing test last month and yesterday I received a letter regarding Speech and Language Therapy.
I was slightly perplexed when I first read the letter. Instead of an appointment for Zachary like I was expecting, it was a invitation to attend a ‘Parent Empowerment’ session which is 2 hours long and no children allowed.
Parents must attend this session where you will be told all about how to help your child with their speech and have a one to one chat with a therapist. It will then be decided whether or not he will be seen for speech therapy appointments.
We are already doing everything we should to encourage Zachary’s speech. We also have 3 other children who have all been early talkers, so I find this invitation slightly patronising.
We have made the decision to not attend. Instead we are paying for an independent Speech and Language Therapist to come to our home to assess him. At £150 for a 2hr assessment and report it’s not exactly cheap, but we feel it’s best for him.
Then today we had an appointment with podiatry to check Zachary’s feet. Yet again I came away from one of his appointments feeling deflated, no less worried and like no one is truly listening to my concerns.
The podiatrist couldn’t do a full assessment as Zachary is not yet independently mobile.
He did assess his cruising as well as his leg movement. He has hypermobile legs and flexible flat feet. His delay in walking is more than likely down to the hypermobility and that he just does not have the strength to support himself.
We were advised to allow him to walk without shoes on, as they could be heavy for him, and they would like to assess him again once he has been independently mobile for around a month.
The podiatrist did however mention that as Zachary has other delays that he should be seen by a paediatrician for a development check. He noticed that Zachary has really good understanding of what is being said and what is asked of him, yet is unable to communicate back in an audible manner (he will often screech).
I have contacted the Health Visitors to discuss a referral to the paediatrics team, but I may just go to speak to our GP instead.
I keep getting told by Heath professionals about early intervention, yet this is exactly what I am trying to do and keep getting told to ‘wait and see’ or ‘he’s a boy’ or ‘he’s just lazy’.
Maybe he is lazy, maybe he will pick it up in his own time – but how much longer should I wait? How much longer can I wait? We are already at the stage where we dread taking him out because he screams and screeches as he tries to communicate and you see people flinching, staring or making snide comments about it. How much longer do we, does he, have to go on like this?